Health Lyme Disease

My Lyme Disease Journey (On My 3 Year Anniversary)

Today marks three years since I was diagnosed with Lyme Disease. Check out how my Lyme journey began.

Hello everyone, I hope that you had an amazing weekend!  I cannot believe that it is Monday again and how fast time flies.

This morning I woke up and realized that today marks three years since I was diagnosed with Lyme Disease.  This day and the three years since have been kind of a roller coaster but I wouldn’t change any part of it.

IMG_0935 In a Tree

When I got out of bed this morning, I felt incredibly grateful.  I slept through the night, was able to stand up without muscle pain, and could walk into the other room without extreme fatigue.  These were all things that I couldn’t do three years ago.  I was also extremely confused, angry and scared when I first got my diagnosis.

I remember the phone call from my doctor like it was yesterday.  We had been through months of various tests without any leads: blood, ultrasounds, urine, physical examinations.  After months of frustration (and years of pain!) my doctor said to me, “I don’t think you have it, but let’s test you for Lyme just incase.”  When he called on October 29, 2015 he was elated that we had finally found something!  He called it “acute Lyme” and thought it would be easy to treat.  It would require just one, maybe two, rounds of antibiotics and I would be good to go.

Unfortunately, this was not the case.  After a few rounds of antibiotics, I still had leg pain, digestive distress, severe fatigue, insomnia, anxiety and brain fog.  We tested my blood once more and the results for Lyme actually came back negative.  My doctor said this was great but that I would probably have symptoms for the remainder of my life.  I was extremely upset and discouraged.  I tried to shrug it off and ignore the pain but it only increased and it was becoming difficult to live my normal life (and to keep teaching fitness classes every day!).  Plus, I was extremely discouraged and lonely.  I would lay in bed crying every night.  Why did this happen to me? And how could one little tick change my whole life????

Luckily, I didn’t have to feel so alone.  I was able to find a vast online community who offered suggestions and support.   In addition, I met a woman in our neighborhood who had been struggling with Lyme for years.  She was able to offer some advice for treatment and we decided to start seeing the doctor that helped her cure her illness.  For the first time in a long time, I was hopeful for a positive outcome……

More tomorrow on how I treated Lyme Disease. Stay tuned ❤

 

 

3 comments

  1. Oh my gosh! I can’t believe it’s been 3 years! I remember it so clearly too. I am also grateful that you are so much better than you were – so much better than others who don’t know what you now know. I can’t wait to read tomorrow’s continuation.

    Liked by 1 person

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